Not many people are lucky enough to get to sing with a star like Chris Martin - Jennifer Miller

Jennifer Miller, young oncology patient (age 22)

Jennifer Miller

Not many people are lucky enough to get to sing with a star like Chris Martin, lead singer of Coldplay, but that’s what happened to me last weekend at The Christie. And I could never have imagined that it would happen 18 months ago, but 18 months ago I had no idea that I was about to be diagnosed with Leukaemia.

When I was diagnosed with acute promyeloid leukaemia in February 2015, I lost my confidence and thought I had lost my love for music and singing.

I was being treated on the Teenage and Young Adult oncology unit and it was a tough time. My veins narrowed and I had to have a number of lines put in for the treatment to be administered. After every round of chemotherapy I seemed to pick up an infection and needed to be brought back to The Christie.

The nurses would joke with me because no matter how ill I was I always had my music on and was singing along to it - this was my way of coping with what I was going through.

It was during this time that I met Steph, the music teacher on the Teenage and Young Adult oncology unit, and she helped to restore my love for music and singing. Steph had confidence and believed in me.

Every time I had to come back to The Christie after treatment meant I could practice and learn new music. At first I wanted to learn a new instrument but the headaches and chemo made me so ill that I couldn’t stand to practice for more than 5 minutes, as it was just so hard to concentrate. So Steph suggested that it would be best to stick to singing and I agreed.

I was encouraged to get involved in the young oncology unit band called YOU62. The band is made up of young cancer patients who all come to The Christie on a Thursday to practice and learn new songs.

The band have done some fabulous things. We were invited to go to London for an amazing opportunity to record our own song at Vivid Colours Abbey Road which is now available to buy and the money goes to The Christie.

Going to The Christie and singing with the band is what is getting me through life at the moment. The band has given me so much more confidence and belief in myself. I have been given opportunities that I would never have believed in myself enough to do without the band, like singing at fundraising events and in front of staff and patients at Christmas and Halloween.

But, without a doubt my favourite experience was last weekend when Chris Martin from Coldplay came to meet the band and other young patients at The Christie. We were given the opportunity to sing for him and then to sing with him - one of his songs The Scientist!

I can’t explain how amazing this was. We then sat around talking to Chris. He asked us about the YOU62 band and we asked him lots of questions. Chris then posed for photos with us and singed CDs and merchandise. As he was leaving he said he’d had a lovely day and wished he didn’t have to go to work, as he wanted to stay and sing and talk to us, but he had a Coldplay concert at the Etihad stadium that night.

Chris’s tour manger came back with a gift bag for us all. It was so thoughtful, we had tour merchandise and badges, iTunes gift vouchers, felt tip pens, notepads and Lego - all things we can use when we are in hospital.

I went home smiling and telling everyone about my day and how down to earth and amazing and genuine Chris Martin was. I didn’t think the day could get any better but how wrong I was. 

As I got home and opened Twitter and Facebook to upload my photos and videos Coldplay had posted a video from the concert. In it, Chris Martin was telling the whole Etihad stadium full of Coldplay fans how he had been to visit us and had the opportunity to sing with YOU62. He then asked the whole stadium to join in singing the chorus to The Scientist and said he was dedicating it to us. I was so overwhelmed. I was covered in Goosebumps and crying. It just shows that some celebrities are really down to earth.

I’d want to thank The Christie, the Teenage and Young Adult oncology unit and the music teacher Steph for believing in me and giving me all these wonderful opportunities.

Without The Christie, and all the wonderful thing they do for young patients, I don’t think I would have got through my diagnosis and treatment. I have also made some amazing friends and am so lucky to be part of a wonderful band doing something I love.

Thank you.

Being a young person with cancer can make you feel isolated - Sophie Vohra

Sophie Vohra - Patient in our Teenage and Young Adult Unit

Sophie Vohra

At the age of 23, one of the last things you expect to hear is that you have cancer. In April I was diagnosed with a Ewing’s Sarcoma on my sacrum. I had been suffering increasingly from bad pains and numbness down my right leg since January, which became so unbearable during March that I finally decided to visit my GP. 

Initially, we both thought that the pains were due to sciatica and that I should try to reposition the slipped disc into place with NHS recommended exercises and using anti-inflammatories to help with any swelling. Over the next two weeks I was unable to sleep because of the pain when lying down, having visited the GP again for pain relief that didn’t have any effect. 

I finally accidentally aggravated it so much after I had been swimming that I went into retention and had to go into A&E as we thought it may in fact be Cauda Equina Syndrome, which would require immediate surgery. 

When I was transferred to Salford Royal, they scheduled me for an MRI, assuming they would see a  slipped disc. Sadly what we got back was worse. There was in fact a lump that was pressing onto my spinal cord and at that point they didn’t know what type of mass it was. I therefore had a biopsy and after having to wait around two weeks I was told it was malignant and by the end of the month I was told it was a Ewing’s Sarcoma that was pressing on my nerves. 

Each time I received another piece of the puzzle as to what it was I would get upset for a little while and then I would get my head round it all.  I knew I would get all the treatment I would need and that I would have the incredible support of all my friends and family throughout it.

I started my treatment at the end of April at The Christie, and everyone and everything from the minute I walked in was incredible. My family and I never felt like we weren’t getting all the information we needed and the organisation of my treatment from the beginning was so efficient. 

I had all the initial tests done, I was randomised onto a trial regarding the administration of the chemotherapy for Ewing’s Sarcomas, had a Hickman Line inserted, and began treatment in the space of a few days. 

The fourteen cycles of chemotherapy over the months were tough and my body certainly found its way around most of the side effects – sore mouth, achy body, no blood cells… the list goes on! My treatment cycles occurred every two weeks, whereas the standard treatment is every three weeks. This meant I had very little time to feel well enough to do anything because as soon as I had recovered from the chemotherapy I almost immediately started the next dose. 

Being around some of the nicest doctors, nurses and other staff you will ever meet was also really comforting when, for several months, you feel like you spend almost all of your life in hospital. 

I was also very lucky to be put forward for Proton Beam Therapy treatment in America, as my tumour cannot be operated on. This treatment means that, as opposed to standard radiotherapy, less damage has been inflicted on the area surrounding my tumour and hopefully I have less of a chance of secondary cancer which can be caused by treatment. Having all of this available to me has meant I have received all the best opportunities to try and beat this horrible disease.

The Christie also has teams in place to make sure that your social and mental needs are looked after. A cancer diagnosis means you are plucked out of normality for a while, which is a huge shock to the system. 

With having to spend long periods of time receiving treatment on the ward, one of the things I am incredibly grateful for is the amount of facilities and activities that were made available. 

Both the Palatine ward and the day unit are designed to allow younger patients, their families and friends to have as enjoyable a time as possible while going through some really difficult times. The hospital provides modern single-occupancy rooms, a social hub for when you want to spend at least a little time out of bed, access to games and DVDs from the games room and a gym space amongst many other amazing things. Many people who have visited me on the ward couldn’t believe how wonderful it was and questioned if it was in fact a hospital! 

These facilities are also available for anyone no longer receiving treatment, which means that former patients can come to events held on the ward for example. We have all manner of events organised for us within and outside the hospital. There are band rehearsals, art workshops, language lessons, cooking and baking, a pizza and film night every Wednesday, and seasonal events such as a Halloween party held on the ward just to name a few. 

The teams also get tickets for music and sporting events, organise meals and get-togethers, and generally encourage a lot of interaction between all former and current patients. These are advertised on their Facebook page so we can easily be kept in the know. 

Being a young person  with cancer can make you feel isolated because it is less likely that we have come across someone in our lives who is going through the same thing at the same age. So being able to relate to others who are, or have been, in the same position as you is very important in understanding and coming to terms with the experience you and those close to you are going through.

I have finally come to the end of my treatment, with only the post-treatment scans to happen now, and I know I couldn’t have got through it without the incredible support of every single person who works with Teenage and Young Adult  patients. 

No one should ever have to go through a life-threatening illness like cancer, but places like The Christie and the facilities they have for young patients mean that we can not only get through our treatment, but can also continue to live a fulfilling and happy life as we do. 

I can move on now with my life, having started my PhD last month at the University of York. 

But I also have a very important network of people who I am very glad I met out of such an awful experience, and I will stay in touch with this group of inspiring young people who have come together through The Christie and the incredible staff who have supported us.